Well here we are it's already August. I can't hardly believe it. I thought Sis would have been home for a while by now. No such luck. My friend Treena rode with me today so that I could make the drive down to see Sis. I get so anxious when I'm getting close to her room. I love walking in and seeing her big smile. I usually walk in and say Sissy mommies here. She will grin from ear to ear. I always let the nurses know when I'm coming down. Makes an easy day for them because I do all her trach care and bathe her, get her dressed and now I can even put her in her stander since they've shown me how to use it. She is such a beautiful girl. She absolutely makes my day. Over the last week they have come down on several of her ventilator settings and she's handled it like a champ. The doctor says he might try her with a trach collar before too long. She will still be on oxygen just without the ventilator. That is such good news. But because we've kind of been around that block before we take everything the doctors say with a grain of salt. We always have hope but not to the point that we will be disappointed if it doesn't work.

One of the babies NICU nurses stopped by while we were eating lunch. It is so good to see them and to be able to tell them how things are going. They were their babies too for a long time. People I would consider family. We talked about the progress with both babies and how upset all the NICU nurses were when they heard Sis couldn't come home for a lack of ventilator. Dougie got to give her a hug and of course we had to show her all the things he can do. She was so proud of him. We were so lucky to have all the wonderful nurses that we did in the beginning and even now. They become such a part of our lives. The care they took of our babies means so much to us. They have a special place in my heart and I love them for what they've done for us.

It won't be long and I guess we get to spend 1 more birthday at the hospital. We will take a big cake up so we can spend the day with Sis. Last year her room was full of nurses and doctors (some who came in off work) and family that drove the 2 hours to be with us. It was a special day even though she was so sick. This year will be different she'll be alert and able to have some fun too. Even though it'll be at Glennon we will try and make it special for them both.